Welcome to Kiley's Journey! Kiley was born June 21, 2010. Not long after she was born she was diagnosed with 8q duplication (AKA) Trisomy 8 Mosaicism Syndrome, Ventricular septal defect, Double outlet right ventricle, Congenital Pulmonary Stenosis, absence of her corpus callosum, and is only able to eat through her g-button. She had open heart surgery January 13, 2011 to repair her VSD and during that time we were told when she gets bigger that she will require another heart surgery to have a stent put in. She is significantly delayed but with the help of Physical therapy, Speech therapy, and Occupational therapy she continues to amaze us. When we started our journey we knew very little about raising a child with special needs but thanks to some wonderful groups on Facebook I was able to get the support I needed. Some of these amazing groups include Mommies of Miracles, Feeding Tube Awareness,Family Network TV, Exceptional Family, and Resources for Families who have Children with Special Needs. On these pages you will find different discussions and topics about children with Chromosome issues, Cerebral Palsy, Down Syndrome, ect.
You can also follow Kiley on Facebook at http://www.facebook.com/pages/Kileys-Journey-Life-is-full-of-endless-Possibilities/178625815550225?ref=tn_tnmn
You can also follow Kiley on Facebook at http://www.facebook.com/pages/Kileys-Journey-Life-is-full-of-endless-Possibilities/178625815550225?ref=tn_tnmn
