Kiley's Promise of Hope is in the process of becoming a 501 (c) (3) non profit organization that wants to help spread awareness about congenital heart defects and feeding tubes. I have started making personalized tote bags and delivering them to St. Louis Children's Hospital and Mercy + to be given to families when their child has just had a gastrostomy tube placed or heart surgery.
Stuff you will find in the tote bag for the parents include a journal, word find book, pen and pencil, kleenex, hand sanitizer, tooth brush kit, button beauties, and a list of resources which will include useful information and web sites.
Stuff included in the tote bag for the kids include a coloring book and colors, books, and either a Heart Friend or a Tubie Friend.
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If you would like to request a Heart Friend for your child or you have any questions please email me at nderousse@yahoo.com
Tubie Friends
I have also teamed up with a group of mothers just like myself and we are making Tubie Friends and sending them to children all over the country. If you would like to request a Tubie Friend from this wonderful organization please email us at tubiefriends@gmail.com so you can fill out an application.
You can also find Tubie Friends on Facebook at http://www.facebook.com/tubiefriends or at www.tubiefriends.com
To make a donation, you can purchase an e-gift card from Build-A-Bear
http://www.buildabear.com/
This is what a Tubie Friend looks like
Notice the g-button that is placed in the bear
